EPIDEM privacy policy
EPIDEM is a new type of
pandemic control tool, and privacy concerns have been at the heart of EPIDEM
since its early days. These concerns have been addressed and alleviated with
the following methodologies:
Invisible Data Management On Your Phone
1- EPIDEM needs access to
your file system only for the purpose of logging on. No other data is removed
or accessed on your phone because not everyone has access to emails and complex
web browsers.
If EPIDEM is to work at its most effective, we need the majority of a population or
quarantine bubble to have quick and fault-free access to EPIDEM. User
verification and log-on functions have been automated because many people do
not use their smartphones as a web browser or emailing system.
Therefore, EPIDEM generates
and records an automatic log-on ID for you on your phone. This is done to make EPIDEM
instantly useful in fighting infection outbreaks.
Removing Your Contact Data
When the epidemic is over,
simply delete your name and contact details and they will be in turn deleted
from the cloud database after you submit your final daily survey.
Only metadata remains. You
can actually see all contact data and metadata every time you use EPIDEM.
Data Collection On
Your Smartphone
Epidemiological data
collection
1- Data collection and data analyses
are at the heart of epidemiology.
An accurate collection of
outbreak-related data saves lives. Epidemiologists and other public health
officials can glean from an accurate data store’s valuable insights into how
and where infections occur and use this information to help individuals to plan
health resource allocation and to generate location specific public health advise.
2- Your privacy protection is
vital. But it conflicts with epidemiological needs.
EPIDEM therefore uses a
unique, two-tier data model.
a. Public/metadata model
Metadata is the glue which
holds the Internet together. Without it the Internet cannot function. Google-type
browsers and all social media and shopping cart systems need metadata to send
and receive data and to return it to you on your smart phone or computer.
EPIDEM shows you at the point
where data is sent to the EPIDEM cloud data store, which data is sent to the
server.
Because metadata is vital to
the smooth running of the Internet, EPIDEM keeps this data in cloud storage
indefinitely. This is exactly what every other Internet technology, like Google-type
browsers and all social media and shopping cart systems do.
For lay people, this is a
hard concept to grasp. Therefore, the following explanation is designed to
plain talk about metadata.
Metadata is nearly the same
information we would have used in a paper-based telephone books.
·In a phone book, you have a phone
number, which is on the internet your IP number.
·You have a home address,
which on the Internet is your global satellite position (GPS). In EPDEM, this
is your Longitude and your Latitude.
·In a paper phone book, you
have your name listed publicly, which we do not need on the Internet.
·You have your gender
listed in phone books, i.e., Rob is male etc. as in Mr. and Ms. for
female etc. Therefore, your gender is public knowledge already.
·You have your approximate age
listed, i.e., Mr. or Mrs. is a grown up because you have paid for a phone line,
i.e., children did not have their own telephone lines. Therefore, your approximate
age is already public knowledge in a paper phone book.
·On the Internet, we do not
need to record your home address, whereas in a paper phone book, your
home address was available to everyone.
Therefore, the Internet
actually offers more privacy protection than a paper phone book.
b. Private contact data model
It is important to note that
your private contact information is not connected to your meta
data in EPIDEM. This is actually more private than a paper-based phone book.
·You do not have to enter this
data, which has blue labeled data fields in EPIDEM. However, it might save yours
and your family’s life if you can be contacted by your local COVID-19 tracing
or health department team. The choice is yours. EPIDEM can work effectively
with or without your contacts details.
·All data which is labeled
blue on the first screen is private contact data.
·First Name
·Last Name
·Mobile phone number
·Message alert
·email
All other data you see on the screen is
metadata.
3- What happens to my data
after the pandemic is over?
Access to your metadata
Your metadata is visible on
infection outbreak maps to the general public for only 14 days.
·If you did enter your contact
details into EPIDEM, simply delete your private contact data in your app and do
your last survey. EPIDEM then records your contact details as NULL.
·This means only your metadata
remains on the cloud server.
·Your metadata is gold to
epidemiologists and your local health department and infection tracers who are
working to keep you and your family safe.
·Ultimately it is up to your
government if they choose to delete all metadata. But frankly this would be as
stupid as burning all paper phone books. It would also put you and your family’s
future health and wellbeing at risk, because valuable insights of how an
epidemic grows and is ultimately defeated would be lost.
Private Access to Data and Metadata
·EPIDEM social links create a bubble
of linked infection-free app user. It is like a mobile quarantine system to
keep infected people away from you or to contain and isolate infected people
from the public.
This dual purpose of EPIDEM
is a little strange. But think of it like an infected monkey in a cage. Is the
infected monkey locked in the cage and protected from you? Or are you locked
out or the cage and protected from the infected monkey? Both ideas hold true.
EPIDEM therefore can quarantine and contain an infected monkey. Or quarantine
you from catching and infection from the monkey.
·People in your infection-free
bubble are known to you, they are your family and friends as well as your
acquaintances like doctors, dentists, chemist, teachers, fellow students,
playmates, kindergarten staff, cleaners, your grocers, service trades people,
work colleague, customers, and entertainment and transport provider.
·Your social media connection
stays active and is ready to be called on should another epidemic wave strike.
·If you started an Epidem social bubble connection you might be a
health worker gathering or tracking infectious people and their contacts.